BUILD
Building ecosystems of person-centred integrated care through co-creation
Summary
The BUILD project is a response to the ongoing profound demographic shift in Europe, where the increasing life expectancy and growing population aged 80 years and above present significant challenges for public health. This demographic trend underscores the pressing need to address the complex care needs of older adults, characterized by multimorbidity, frailty, and cognitive impairment. Older adults with complex care needs are “more than the sum of their conditions”, and accordingly, their treatment and care call for the integration of social care, health care and other forms of support.
Person-centred integrated care (PC-IC) has been widely proposed as one solution to tackle these challenges and decrease social inequalities in access to long-term care (LTC). PC-IC is based on four principles: (1) personalized (2) coordinated (3) enabling and (4) treating people with dignity, compassion and respect. However, despite widespread acknowledgment of the benefits of PC-IC, its practical implementation has been hindered by top-down approaches that overlook the voices and experiences of older adults and their caregivers, particularly those marginalized through social exclusion.
The BUILD project seeks to address these gaps and challenges by promoting participatory co-design and community engagement as key methodologies in developing sustainable and socially inclusive PC-IC solutions. By engaging communities across Europe in participatory and co-design workshops and conducting a longitudinal study on inequalities care transitions, BUILD aims to gather insights into the diverse needs and skills of older adults and their caregivers. These insights will inform the development of a comprehensive framework and toolbox for policymakers and stakeholders, facilitating the bottom-up design of PC-IC solutions tailored to local contexts.
Activties
WP1 Mapping Ecosystems of Integrated Care in Terms of Person-Centredness, Inequalities and Technologies will map existing ecosystems and definitions of integrated care as well as SROI approaches and evaluate them using criteria for person-centredness, technical requirements and inequalities aiming to devise a typology clustering European countries according to these criteria.
WP2 Cross-National Study on Social Inequalities in Care Integration will conduct a preliminary analysis of inequalities in accessing care. Building on a methodological framework for cross-national data collection, interviews will then be conducted in four countries and analysed drawing on Grounded Theory.
WP3 Co-Design of PC-IC solutions will conduct and analyse workshops for participatory development of technology solutions and person-centred scenarios.
WP4 Identification of Promising Policy and Governance Practices in LTC and Development Policy Recommendations for PC-IC will elaborate policy and governance recommendations for person-centred integrated care, building on criteria for promising practices and policies as well as analysis of barriers.
WP5 BUILD co-design framework and toolbox will integrate the project’s results into the co-design BUILD framework and its toolbox, making them actionable and impactful.
WP6 Dissemination, Exploitation, Communication, Engagement will establish the interdisciplinary BUILD Association Board, promote the dissemination of outcomes, and forge an exploitation pathway seeking to maximize the project’s impact.
WP7 Project Management will ensure the timely delivery of project objectives, establish an internal cross-cutting issue expert board, and develop and implement data protection and ethics measures.
Partners
• Universität Bayreuth (Germany)
• Instituto Superior de Economia e Gestao - ISEG (Portugal)
• Univerzita Karlova (Czech Republic)
• Karl Landsteiner Privatuniversität für Gesundheitswissenschaften
GmbH (Austria)
• Fonden Teknologirådet (Denmark)
• Katholische Universität Eichstatt-Ingolstadt (Germany)
• Fundación Avedis Donabedian Para la Mejora de la Calidad Asistencial (Spain)
• VICESSE Research GmbH (Austria)
• Globaz, S.A. (Portugal)
Runtime
03/2024–02/2027
Funding
BUILD has received funding by the European Union’s Horizon EUROPE research and innovation programme HORIZON-CL2-2023-TRANSFORMATIONS-01 under grant agreement no 101132365.
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